Not Going Quietly

(Not Going Quietly)

The doctors told Ady Barkan he has four years to live. He therefore decided to live them in such a way that his son will be proud of him one day and has dedicated himself to a campaign to change healthcare in the USA.

Ady Barkan and his wife Rachael described themselves as the happiest people in the world. Their son Karl was born and everything looked rosy. Until Ady was diagnosed with an incurable disease at the age of 32. Ady's amyotrophic lateral sclerosis gradually robs him of his time with his family, but he still wants to do something for others before he leaves forever. Before losing his voice, he embarks on a journey across the United States. His "Be a Hero" campaign aims to change the American healthcare system. The weaker Ady's body gets, the stronger his voice becomes. And it will not diminish even when he must deal with the difficulties of the health system first-hand, or during a pandemic.

Impact

Ady Barkan is an American activist whose captivating life story is told in the documentary Not Going Quietly. At the age of 33, doctors gave him a devastating diagnosis: Ady suffers from amyotrophic lateral sclerosis (ALS for short). The disease, which most people associate with Stephen Hawking, causes gradual muscle paralysis. But that didn't stop Ady from being a husband and father and from launching the Be a Hero campaign, which loudly criticises the shortcomings of the American healthcare system. More about the campaign, Ady's life story and opportunities to get involved can be found on the Be a Hero fund website https://beaherofund.com/.

About the film

Director: Nicholas Bruckman
USA
2021 | 96 min.

Language: English

Subtitles: Czech, English
In the case of outdoor screenings, the films are shown only with Czech subtitles.

World premiere

Category

Right To Know

Director

Nicholas Bruckman

Filmography
2021 - Not Going Quietly
2015 - How We Do It
2008 - La americana

Nicholas Bruckman

Others Films from category Right To Know

A Thousand Cuts

A Thousand Cuts

Philippine President Duterte leads an unconditional war against drugs as well as against his opponents, chiefly the independent press. The chief target is the Rappler news server and its unyielding director Maria Ressa.

Arica

Arica

A Swedish mining company transported toxic waste to the Chilean city of Arica in the mid-1980s. The locals still suffer from health problems. All they want is justice.

Fly So Far

Fly So Far

Teodora Vásquez was accused and subsequently sent to prison for deliberately giving birth to a dead child. The years behind bars did not break her. On the contrary, they inspired her to fight for the rights of other unjustly punished women in El Salvador.

Childbirth Banned In Paradise

Childbirth Banned In Paradise

Hundreds of tourists flock to Fernando de Noronha Island daily. At the airport they pass crying pregnant women, who must temporarily leave this paradise. Since 2004, the Brazilian government has ordered them to give birth only on the mainland.

In the Same Breath

In the Same Breath

In terms of the coronavirus crisis, 2020 unfolded in surprisingly similar ways in China and the USA - in summary, in a tragic underestimation of the situation and in lying to their own citizens. Who is responsible?

Not Going Quietly

Not Going Quietly

The doctors told Ady Barkan he has four years to live. He therefore decided to live them in such a way that his son will be proud of him one day and has dedicated himself to a campaign to change healthcare in the USA.

Only Devil Lives without Hope

Only Devil Lives without Hope

Human rights activist Dilya tirelessly battles for the release of her brother Iskandar. Sixteen years ago, he was thrown in Uzbekistan's Jaslyk Prison, notorious for torturing prisoners.

Seyran Ates: Sex, Revolution and Islam

Seyran Ates: Sex, Revolution and Islam

The story of an enlightened Muslim imam, feminist and human rights activist who seeks to free Islam from gender discrimination and open it to those for whom it has long been closed off.

The Red Ring

The Red Ring

Through his own experience with a serious, life-threatening and mysterious disease, Joonas Berghäll reveals the hardships experienced by people with chronic Lyme disease.

Writing With Fire

Writing With Fire

To make a revolution in the Indian caste system is challenging for them, but they are succeeding very well at digital revolution. The women's editorial board, made up of members of the lowest caste and led by reporter Meera, has been fighting for human rights in India for 14 years.